Why this started

Built from lived experience.

ME/CFS Support came from experiencing how isolating this condition can feel, and how difficult it is to find useful, reliable support in one place.

This started from personal experience. After an EBV infection, I developed ME/CFS and have been living with the condition for 18 months and counting. Before that, I was very active and fit, so adjusting to a very different pace of life has been difficult.

Having undertaken extensive independent research and tried different strategies to improve, I am fortunate that progress has been made. It has made it clear how much people need better support, clearer information, and a place to share what works for them.

Lived experience matters

This is being shaped by the reality of living with illness day to day, not just by theory.

Adjustment takes time

Learning to live at a different pace can be difficult, and it helps to hear from people who understand that shift.

The kind of support I wanted

The aim is to build the kind of place I wanted to find: clearer, calmer, and easier to return to.